Though the world health assembly passed a resolution to “eliminate leprosy as a public health problem” by 2000, the disease is still common in many countries worldwide. Leprosy deforms and disables but seldom kills so that those who have been crippled live on getting steadily worse. Thus, the researcher was prompted to explore the lived experiences of patients with leprosy. A descriptive phenomenological qualitative approach was used for this study, to explore lived experience of patients with leprosy. In-depth audio taped interviews were conducted with six participants, data was analyzed using Colaizzi’s framework and Watson’s Human caring theory directed the study. The process of analysis identified five central themes: Living with physical disability, living with social dilemmas, living with economic hardships, relative social acceptance, and living in harmony with self and God. Notably, physical disabilities push patients with leprosy to the extreme of poverty. Failure to meet the basic human needs increase their susceptibility to chronic ulcers and an enduring hospitalization. Ability to meet the basic necessities of life was seen to increase social acceptance and respect from community members who are not affected by leprosy. Thus, economic rehabilitation is the most preferred solution to overcome the agony faced by patients with leprosy.
| Published in | World Journal of Public Health (Volume 2, Issue 2) |
| DOI | 10.11648/j.wjph.20170202.12 |
| Page(s) | 67-74 |
| Creative Commons |
This is an Open Access article, distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution and reproduction in any medium or format, provided the original work is properly cited. |
| Copyright |
Copyright © The Author(s), 2017. Published by Science Publishing Group |
Experience, Patients, Leprosy, Uganda
| [1] | Rodrigues CL & Lockwood NJD (2011) Leprosy now; epidemiology, progress, challenges and research gaps. The lancet infectious diseases, 11 (6) 464-470. |
| [2] | Sermrittirong S & Van Brakel WH (2014) Stigma in leprosy: concepts, causes and determinants. Lepr Rev. 85, 36–47. |
| [3] | WHO (2012) Weekly epidemiological record; leprosy updates. 36: 389-400 [internet] available at http://www.who.int/wer [accessed on 10/12/2011]. |
| [4] | Vornick L, Vyes MJ & Zieki D (2011) Leprosy: Hensen’s disease review. Accessible on the web http://www.nebi.nlm.nih.gov/pubmedhealth/PMH0002323[accessed on 4/5/2012]. |
| [5] | Sinha K (2011) WHO warns, leprosy spreading in india [internet] available at http://wwwarticles.timesofindia.indiatimes.conf [accessed on 4/5/2012]. |
| [6] | Kawuma HJ (2010) Prospects for sustaining leprosy in Uganda. Lep Rev 81: 366-339. |
| [7] | Bonney JJ (2011) Responding to social economic implications of leprosy, new Delh, India. Lepr Rev 82; 88-92. |
| [8] | Morse JM (2000) Determining sample size. Qualitative Health Research, 10 (1), 3-5. |
| [9] | Lacey A (2006) The research process: In the research process in nursing 5th edition, Blackwell publishing, oxford, UK. |
| [10] | Kock T (1994) Establishing rigours in qualitative research: The dicision trial Journal of advanced nursing. 19: 976-986. |
| [11] | Finley L (2003) The reflexivity journey: Mapping multiple routes: a practical guide for researchers in health and social sciences, Blackwell sciences, oxford, UK. |
| [12] | Polit DF & Beck CT (2010) Essentials of nursing research: appraising evidence for nursing practice, 7th edition. Lippincott Williams and Wilkins Philadelphia USA. |
| [13] | Steubert HJ and Carpenter DR (2010) Qualitative research in Nursing; advancing the humanistic interpretive 5th edition, Lipponcott and Wilkins, Philadelphia, USA. |
| [14] | Moule P & Goodman M (2009) Nursing research; An introduction, 1st publication, Sage publication LTD, London UK. |
| [15] | Burns N & Grove KS (2007) Understanding nursing research, building an evidence based practice, 4th edition, Saunders Elsevier, St. Louis, Missouri, USA. |
| [16] | Cookson R & Rhodes S (2011) Leprosy India’s hidden disease. Education for Health, Vol. 13, No. 2, 2000, 263–271. |
| [17] | Sheih C, Wang HH & Lin CF (2000) From contagious to chronic: A life course experience with leprosy in Tiawanese women. Lepr Rev 77: 99-113. |
| [18] | Kant VP (1984) Social economic problems of leprosy patients and their relatives in Gujarat state India. Lepr Rev 56: 889-899. |
| [19] | Tsutsumi A, Izustu T, Akul MD, Uddin JA, Makahara S, Takagi F & Wakai S (2004) Depressive status of leprosy patients in Bangladesh; association with self-stigma. Lepr Rev 75; 57-66. |
| [20] | Van Brakel W (2003) Measuring leprosy stigma; a preliminary review of leprosy literature; International journal of leprosy and other mycobacterial diseases. 71: 190-197. |
| [21] | Rafferty J (2005) Curing the sitgma of leprosy. Lepr Rev. 76, 119–126. |
| [22] | Scott J (2006) The psychological needs of leprosy patients. Lepr Rev; 71: 486-491. |
| [23] | Chandler DJ, Hansen KS, Mahato B, Darlong J, John A, Lockwood DNJ (2015) Household Costs of Leprosy Reactions (ENL) in Rural India. PLoS Negl Trop Dis 9 (1): e0003431. doi: 10.1371 journal.pntd.0003431. |
| [24] | Chens, Chu T & Wang T (2005) qualitative assessment of social, economic and medical needs for ex-leprosy patients living in leprosy village in Shandong province. The people’s republic of china. Lepr rev, 76; 335-347. |
| [25] | Poestges H (2011) Leprosy the key to another kingdom NIHR kings, patient safety and services; quality research center, kings college London Lepr rev 82 155-167. |
| [26] | Awofeso N (1995) Effects of social cultural beliefs on patients perception of leprosy: A gender factor. Trop geogr Med, 47: 175-178. |
| [27] | Van den Broek J, O’Donoghue J, Ishengoma A, Masau H & Mbega ME (1998) Evalauting of a sustained seven year health education campaign on leprosy in Rufiji District in Tanzania. Lepr Rev 69: 57-74. |
APA Style
Baluku M. Raphael, Samuel Nambile Cumber, Vallence Niyonzima, Jackson Jr Nforbewing Ndenkeh, Rosaline Yumumkah Kanjo-Cumber. (2017). The Lived Experience of Patients with Leprosy at Kagando Hospital, Uganda. World Journal of Public Health, 2(2), 67-74. https://doi.org/10.11648/j.wjph.20170202.12
ACS Style
Baluku M. Raphael; Samuel Nambile Cumber; Vallence Niyonzima; Jackson Jr Nforbewing Ndenkeh; Rosaline Yumumkah Kanjo-Cumber. The Lived Experience of Patients with Leprosy at Kagando Hospital, Uganda. World J. Public Health 2017, 2(2), 67-74. doi: 10.11648/j.wjph.20170202.12
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Download@article{10.11648/j.wjph.20170202.12,
author = {Baluku M. Raphael and Samuel Nambile Cumber and Vallence Niyonzima and Jackson Jr Nforbewing Ndenkeh and Rosaline Yumumkah Kanjo-Cumber},
title = {The Lived Experience of Patients with Leprosy at Kagando Hospital, Uganda},
journal = {World Journal of Public Health},
volume = {2},
number = {2},
pages = {67-74},
doi = {10.11648/j.wjph.20170202.12},
url = {https://doi.org/10.11648/j.wjph.20170202.12},
eprint = {https://article.sciencepublishinggroup.com/pdf/10.11648.j.wjph.20170202.12},
abstract = {Though the world health assembly passed a resolution to “eliminate leprosy as a public health problem” by 2000, the disease is still common in many countries worldwide. Leprosy deforms and disables but seldom kills so that those who have been crippled live on getting steadily worse. Thus, the researcher was prompted to explore the lived experiences of patients with leprosy. A descriptive phenomenological qualitative approach was used for this study, to explore lived experience of patients with leprosy. In-depth audio taped interviews were conducted with six participants, data was analyzed using Colaizzi’s framework and Watson’s Human caring theory directed the study. The process of analysis identified five central themes: Living with physical disability, living with social dilemmas, living with economic hardships, relative social acceptance, and living in harmony with self and God. Notably, physical disabilities push patients with leprosy to the extreme of poverty. Failure to meet the basic human needs increase their susceptibility to chronic ulcers and an enduring hospitalization. Ability to meet the basic necessities of life was seen to increase social acceptance and respect from community members who are not affected by leprosy. Thus, economic rehabilitation is the most preferred solution to overcome the agony faced by patients with leprosy.},
year = {2017}
}
TY - JOUR T1 - The Lived Experience of Patients with Leprosy at Kagando Hospital, Uganda AU - Baluku M. Raphael AU - Samuel Nambile Cumber AU - Vallence Niyonzima AU - Jackson Jr Nforbewing Ndenkeh AU - Rosaline Yumumkah Kanjo-Cumber Y1 - 2017/02/23 PY - 2017 N1 - https://doi.org/10.11648/j.wjph.20170202.12 DO - 10.11648/j.wjph.20170202.12 T2 - World Journal of Public Health JF - World Journal of Public Health JO - World Journal of Public Health SP - 67 EP - 74 PB - Science Publishing Group SN - 2637-6059 UR - https://doi.org/10.11648/j.wjph.20170202.12 AB - Though the world health assembly passed a resolution to “eliminate leprosy as a public health problem” by 2000, the disease is still common in many countries worldwide. Leprosy deforms and disables but seldom kills so that those who have been crippled live on getting steadily worse. Thus, the researcher was prompted to explore the lived experiences of patients with leprosy. A descriptive phenomenological qualitative approach was used for this study, to explore lived experience of patients with leprosy. In-depth audio taped interviews were conducted with six participants, data was analyzed using Colaizzi’s framework and Watson’s Human caring theory directed the study. The process of analysis identified five central themes: Living with physical disability, living with social dilemmas, living with economic hardships, relative social acceptance, and living in harmony with self and God. Notably, physical disabilities push patients with leprosy to the extreme of poverty. Failure to meet the basic human needs increase their susceptibility to chronic ulcers and an enduring hospitalization. Ability to meet the basic necessities of life was seen to increase social acceptance and respect from community members who are not affected by leprosy. Thus, economic rehabilitation is the most preferred solution to overcome the agony faced by patients with leprosy. VL - 2 IS - 2 ER -
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